PHF Press Release

Durango Mom Joins National Pediatric Organization in Battle Against Incurable Brain Condition on Behalf of 2 Year Old Son

 Durango, CO- It has been a whirlwind start to the new year for Durango’s Christina Brown. Just months after her 2 year old son Jaden was selected as one of two children to serve as this year's "National Face of Hydrocephalus Awareness", for the Pediatric Hydrocephalus Foundation, Christina was inspired to get even more involved herself in helping to raise awareness about Jaden’s condition.

Finding out that there was an opening in Colorado for a State Chapter Director for the Pediatric Hydrocephalus Foundation, it didn’t take Christina long to inquire about how to fill that role and then accept the offer to actually fill that position.

“I want to raise awareness and educate people about this life-changing path that is soprevalent. I also hope to share all I have learned and learn so much more from being able to be part of the PHF and PHF Colorado. Parents need support in this journey that will forever change our children’s lives”, Christina said.

Occurring in approximately 1 of every 500 births and in over One Million Americans today, Hydrocephalus is a condition in which excessive fluid gathers in the brain, abnormally widening spaces in the brain and placing potentially harmful pressure on brain tissues. Because of lack of advancements in treatment, many affected individuals areleft unable to lead full and productive lives.

Untreated, Hydrocephalus could be fatal. 

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About PHF

The Pediatric Hydrocephalus Foundation, an all-volunteer non-profit 501(c) (3) charitable organization,educates the community by raising the level of awareness about hydrocephalus and provides support to families, friends, and children affected by this brain condition. 

The PHF also raises money for and works with the medical community in searching for a cure and additional treatment options for those with hydrocephalus. Additionally, the PHF advocates on behalf of the members of the hydrocephalus community and works with policy makers at the state and federal levels to raise awareness and push for moreresearch and support in the fight against hydrocephalus. All donations are tax-deductible. 

Since December 2010, the PHF has awarded $70,000.00 in grants and donations to Hospitals, Neuroscience Institutes and Medical Research Centers for Hydrocephalus research & education.

For more information, visit www.hydrocephaluskids.org.