Is It That Time Already?
The time seems to be flying by these days. Moving with such speed, we are coming close to our three month trip to Denver. I just wanted to give a pre-trip update about how and where things are now.
Micah Bear
So this little man of mine blew me away yet again with his braveness. I wanted to try doing the MRI without sedation to see if he could do it. So for the week before, we talked about the doughnut camera. And how it was just like what happened to brother and how it was safe. He did so well, he even fell asleep!
So the results of the MRI say that Micah has what’s called a tiny 5th ventricle. There is no need for medical intervention at this time. And his brain looks nothing like Jaden’s, which I am thrilled with. Knowing things look good up there, makes me feel so much better about not feeling like we missed something.
Jaden Boo
Jaden had his year birthday, well child check up, eye doctor check up, orthopedic 1st appointment and continued PT, OT and vision therapy. His birthday was a day I remember praying I would celebrate with him. So to have him be doing so awesome six months later is a very rewarding feeling. Well child info I updated last post, so I’ll skip the review and stick to the new. Jaden did see the eye doctor for a one year check. All seems to be doing well, still CVI (cortical vision impairment) but no needed intervention and yearly checkups from now on; that is unless something comes up that I notice has changed. The Orthopedic, so because Jaden has had a stroke his bones are trying to grow and because his muscles are always tight, on the stroke affected side there can become hip and foot issues. So Jaden’s hips will need to be followed yearly right now, and more often as he grows. There is about a five point difference on the scale right now with his hips. PT is going well; I do feel like Jaden wants to get moving. We are really working on weight bearing on the effected side. He is working on being able to push a ball down the slide on the therapy gym. He has started being able to do his own sort of constraint therapy. He will not let us tuck his arm into his shirt much these days, so when we try to, he becomes fussy and when we let him have it freely, he will still work to move the ball with the effected side and not the “good” side. Jaden is also now on the Medicaid Waiver list here in Colorado. Being able to use just Jaden’s income will make him able to have medical. The wait list is 2 years long. But because the stroke and hydro are lifelong medical issues, it will mean a lot of help for Roy and I.
We will be going to Denver in June so I will give updates from the trip once we get home and settled.
Up and Coming
We just discovered that my mother has breast cancer. Long and short she will be starting treatment on the 27th of this month. This has shaken my faith that everything happens for a reason. But this is not the first time breast cancer has touched our lives, so I know we can overcome this challenges like many laid before us. It is amazing the power of love and faith in the outcome of a medical situation.
Roy and I are still working hard at school. It makes it stressful now because Roy started back after an almost 6 month break after getting his AA. It is interesting how we manage to get homework done and still have hair left after a day filled with our duties.
I am looking to the future with bitter-sweet feelings. I know the pain I will feel, the feeling of not being able to help enough the people I love. I also embrace the feelings of love, faith and the positive outcome I now will be waiting for us when this challenge is behind us. I am so very thankful for what I have in my life, my kids are amazing, life changing, inspiring and truly are my everything.
I also wanted to share with you all the photo of Jaden’s brain from October of 2010. All the white area you see around the outside is fluid.
Mid-June be keeping an eye out for an update on things. Thanks for your support and love.
Love and Health,
Micah and Jaden’s Mommy
