Dear Jaden

Turning Two

Looking back at the last 2 years, I have been on a rollercoaster of emotions. When I first saw your sweet, new pink little face, I would have never guessed in a million years we would be here in just 2 short years.  I will never forget feeling in the pit of my stomach, knowing something was wrong. Looking back just days before all the appointments started, we were at the fair and a lady wanted to see our new you.  When she did, she blurted out “oh he’s cute, what’s wrong with his head.” My jaw hit the ground I am sure, we at the time made a joke of it, oh we all have big heads…. Never knowing that “joke” would turn out to be our forever reality.  It’s hard not to think about your shunt, is it working? Does it hurt you? Will it work tomorrow? It brings me to tears to think of the answers of hard questions you will ask me as to why? Sometimes, when you are having a bad day I am wishing I could take it away. Truth is I know I am not strong enough to be you, survive what you do and be as happy as you!

In a way I think life brings us to where we need to be and with the people who we need or may need us even more. Because of you I have learned so much about myself, you, your brother, dad, our family, hospitals, doctors, your body, your brain and sometimes total strangers it amazes me it has only been 2 years and at the same time it feel as if the future is charging front and center, faster than ever.

You inspire people everywhere we go, and people who meet you learn something new.  I want you to know that I am ever proud of you being 2! I believe in you more than you believe in yourself sometimes and even when it is unbearable, just keep trying. You can do it. Mommy, Daddy and Big Brother love you.

Happy Birthday Big Boy!



Jaden, 2 and Daddy