April Showers

New News

I feel like I have so much to catch up on, so much happens so quickly these days. I am excited to be writing this up date. I am so hopeful about the future, yet harbor feelings of trepidation. I will update on the support group happenings, health, therapy, SSI and the big #1 coming up!

Support

Last week I flew to Denver to Children’s hospital for the first stroke support group meeting there.  I was out of my mind nervous for this meeting for a number of reasons. I have only ever been on a plane once in my life. So to make the trip by air was hard for me.  I never thought I would be excited to attend a support meeting for parents who have had a child that has suffered a stroke. I am not sure who needs who more, the child or the mother. Kids have a way of helping guide us into who we are meant to be.  The meeting went so well. I was happy to meet parents who are a few years out in dealing with the after effects. I am happy to have the support of the director of the Denver group for a meeting here in Durango; we need this so much, for so many reasons.  Meeting details are in the works right now, I am hoping to have a date in May because May is stroke awareness month.  

Health/Therapy

Overall Jaden has been doing awesome. Health is doing ok. He had pink eye, but with the proper drops, he is doing much better.  Getting ready for his one year well check! Therapy has been going well. We just had our 6 month IFSP (individual family service plan) review. It was hard looking back at the unrealistic goals we set- Just more reinforcement that Jaden is going to do everything on Jaden time! This time we set some really solid goals that I hope we can meet or exceed. If not, we try again.  We are really working on constraint therapy with him. It is amazing how well this works with him. I am so thankful that he is overall such a happy lil man! We just got a play gym with a ramp, slide and steps to work with on all aspects of therapy.  Truly amazing staff with PT and OT that teach us how to help Jaden!

SSI

So the deal with this is like most others- Jaden medically is disabled. However, we are over income by between $35 and $50 dollars each month to get any financial/insurance help here.  So that being said, we are now working on the Medicaid waiver list. I am hopeful about this, I know it may take a few years to get Jaden on, but once he is I will never have to stress if he will have insurance if something happens and it is needed.  So I am not holding my breath, but at the same time I am hopeful that this will work out for the best.

The Big #1

I am shocked and thrilled at the same time that this day has come!  The last year has felt like 5 years for me. We as a family have overcome so much hardship while showing so much strength.  Jaden being here has changed our lives and the lives of our family. Jaden is such an amazing person, just seeing his smile makes me want to work harder!  I am excited to celebrate his first year; it feels like an accomplishment for our family!

Coming Together

Each day is wrapped with daily routines, daily motions- seemingly so slow yet flying by.  Daddy and I are still working hard with school, sticking to it! Micah’s exciting news is that he has become part of the Tigger’s soccer team! He did so great and I think he really enjoyed it! He is also fast approaching the last month of preschool! I am so proud of him; he works really hard and is a great big brother to Jaden!  Each day I am increasingly thankful for my family.

The Next Update

I will be updating more information about the birthday boy and lots more information about the support group details as they come along. I more inspired to make a different here now that I have attended a meeting and know the education, emotional power and positivity it holds for each person involved; providers, parents, family and the community.

Love and Health,

Jaden and Micah’s Mommy